Tag Archives: Upstate New York

CMT Awareness Month Challenge

We’ve all seen the ALS Awareness Bucket Campaign and how ALS successfully raised over $109 million, well now comes the CMT Awareness Challenge. I’ve been nominated for this challenge to write 3 things that I am grateful for relating to CMT, over the next 5 days.
I believe the point is to help people understand what it’s like to have CMT, and let them know where they can donate to find a treatment to stop the progression. Continue reading

Posted in AFO, ALS, Awareness Month, Charcot-Marie-Tooth disease, CMT, CMT Awareness Month, CMTA, Fundraising, Health CMT, leg braces, neuromuscular disease, peripheral neuropathy, personal stories, phrenic nerve | Tagged , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

“Starry Night” Shining on Art for a Cure Benefits the CMTA’s STAR initiative.

The Art de Cure gallery reception, “Starry Night,” at Clinical Prosthetics + Orthotics in Albany, NY on Dec. 2 was a great success benefiting the Charcot-Marie-Tooth Association (CMTA) for research for CMT, the most commonly inherited peripheral neuropathy.

Art de Cure Gallery is a not-for-profit collaboration between art and medicine, showcasing Art in the Community to benefit a cure. Continue reading

Posted in art, Art de Cure, Charcot-Marie-Tooth disease, Fundraising, neuromuscular disease | Tagged , , , | Leave a comment

September Action of the Month

Use Social Networking to Spread the Word

Social networking is a great way to spread the word about news, upcoming events and your personal experiences with Charcot-Marie-Tooth disease. The Charcot-Marie-Tooth Association encourages you to take some time this September to build your social media presence so you can help engage the public when the CMTA launches its CMT Awareness Month campaign on Facebook September 1. By connecting to the CMTA through Facebook and Twitter, you and your friends and followers will have immediate access to our upcoming CMT Awareness Month campaign so you can get involved and help spread the word! Continue reading

Posted in Charcot-Marie-Tooth disease, Health CMT, neuromuscular disease, peripheral neuropathy | Tagged , , , , , | 3 Comments