Tag Archives: Twitter

CMT Awareness Month Challenge

We’ve all seen the ALS Awareness Bucket Campaign and how ALS successfully raised over $109 million, well now comes the CMT Awareness Challenge. I’ve been nominated for this challenge to write 3 things that I am grateful for relating to CMT, over the next 5 days.
I believe the point is to help people understand what it’s like to have CMT, and let them know where they can donate to find a treatment to stop the progression. Continue reading

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Posted in AFO, ALS, Awareness Month, Charcot-Marie-Tooth disease, CMT, CMT Awareness Month, CMTA, Fundraising, Health CMT, leg braces, neuromuscular disease, peripheral neuropathy, personal stories, phrenic nerve | Tagged , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

September 2013 is CMT Awareness Month! What Will You Do to Spread Awareness?

September, CMT Awareness Month is fast approaching. What will you do to spread awareness. There are many ways that we can all help ourselves, by increasing awareness of our rare condition. Something as simple as changing your Facebook photo to the new CMT ribbon: Continue reading

Posted in Charcot-Marie-Tooth disease, CMT, CMTA, Health CMT, Neurologist, neuromuscular disease, peripheral neuropathy, STAR | Tagged , , , , , , , , , , , , , | Leave a comment

Vote to Win a Share of $5 Million for CMT (Charcot-Marie-Tooth) disease

  The CMTA Needs Your Vote to Win a Share of $­5 Million Written by CMTA We need your vote to win a share of a $5 million grant from Chase Community Giving program. it only takes a second to … Continue reading

Posted in Charcot-Marie-Tooth disease, CMTA, Health CMT, neuromuscular disease, peripheral neuropathy, STAR | Tagged , , , , , , , , , , , , | Leave a comment

RARE DISEASE DAY IS FEBRUARY 29, 2012

Lundbeck has launched a campaign to raise funds for rare disease day. Simply click the ‘Raise Your Hand’ icon during February, and Lundbeck will make a donation to a general fund managed by NORD that is used to support rare disease research. Continue reading

Posted in Charcot-Marie-Tooth disease, Health CMT, neuromuscular disease, peripheral neuropathy | Tagged , , , , , , | Leave a comment

CMT Awareness Month on Twitter

Prepared by Steve Weiss @scweiss2001 9/1/11 Twitter is a popular online tool that enables people to communicate and share information with the world. Twitter users write short updates of up to 140 characters in length, called “tweets,” that they post … Continue reading

Posted in Charcot-Marie-Tooth disease, Health CMT, neuromuscular disease, peripheral neuropathy | Tagged , , | 1 Comment

September Action of the Month

Use Social Networking to Spread the Word

Social networking is a great way to spread the word about news, upcoming events and your personal experiences with Charcot-Marie-Tooth disease. The Charcot-Marie-Tooth Association encourages you to take some time this September to build your social media presence so you can help engage the public when the CMTA launches its CMT Awareness Month campaign on Facebook September 1. By connecting to the CMTA through Facebook and Twitter, you and your friends and followers will have immediate access to our upcoming CMT Awareness Month campaign so you can get involved and help spread the word! Continue reading

Posted in Charcot-Marie-Tooth disease, Health CMT, neuromuscular disease, peripheral neuropathy | Tagged , , , , , | 3 Comments