Tag Archives: Rare Disease Day

Take Action For Rare Disease Day!

This will only take a few minutes to get your voice heard! Today, February 29, 2012, is Rare Disease Day.  I just took action to raise awareness in the United States about people with rare diseases! Please take a few … Continue reading

Posted in Charcot-Marie-Tooth disease, Health CMT, neuromuscular disease, peripheral neuropathy, Rare disease day | Tagged , , , , , , , | 1 Comment

RARE DISEASE DAY IS FEBRUARY 29, 2012

Lundbeck has launched a campaign to raise funds for rare disease day. Simply click the ‘Raise Your Hand’ icon during February, and Lundbeck will make a donation to a general fund managed by NORD that is used to support rare disease research. Continue reading

Posted in Charcot-Marie-Tooth disease, Health CMT, neuromuscular disease, peripheral neuropathy | Tagged , , , , , , | Leave a comment

Rare Disease Day February 29, 2012

Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases, such as CMT, as a global health challenge. The day is celebrated on the last day of February every year and this year will be … Continue reading

Posted in Charcot-Marie-Tooth disease, neuromuscular disease, peripheral neuropathy | Tagged , , , , , , , | 1 Comment