We’ve all seen the ALS Awareness Bucket Campaign and how ALS successfully raised over $109 million, well now comes the CMT Awareness Challenge. I’ve been nominated for this challenge to write 3 things that I am grateful for relating to CMT, over the next 5 days.
I believe the point is to help people understand what it’s like to have CMT, and let them know where they can donate to find a treatment to stop the progression. Continue reading
Posted in AFO, ALS, Awareness Month, Charcot-Marie-Tooth disease, CMT, CMT Awareness Month, CMTA, Fundraising, Health CMT, leg braces, neuromuscular disease, peripheral neuropathy, personal stories, phrenic nerve
Tagged ALS, Awareness, Charcot-Marie-Tooth, Charcot-Marie-Tooth Association, Charcot-Marie-Tooth disease, CMT, CMTA, Conditions and Diseases, Disability, Disease, Health, Muscle atrophy, nerve disorder, Neurological disorder, Neurological Disorders, Neuromuscular disease, neuromuscular disorder, Peripheral neuropathy, Public health, Rare disease, research, Twitter, Upstate New York
Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases, such as CMT, as a global health challenge. The day is celebrated on the last day of February every year and this year will be … Continue reading
Use Social Networking to Spread the Word
Social networking is a great way to spread the word about news, upcoming events and your personal experiences with Charcot-Marie-Tooth disease. The Charcot-Marie-Tooth Association encourages you to take some time this September to build your social media presence so you can help engage the public when the CMTA launches its CMT Awareness Month campaign on Facebook September 1. By connecting to the CMTA through Facebook and Twitter, you and your friends and followers will have immediate access to our upcoming CMT Awareness Month campaign so you can get involved and help spread the word! Continue reading