Tag Archives: Peripheral nervous system

Do you start your day by falling on your face?

How do you start your day? I begin most days by getting out of bed, taking a few steps and falling splat on my face. Then I crawl over to the dresser and struggle to pull myself up off the floor with my weakened, muscle wasted arms.
After 47 years of wondering what’s wrong with me- why do I keep tripping over my own feet and spraining my ankles? Why can’t I get up out of a chair without my husband grabbing me by my belt loop to pull me up? Why do I need to crawl up the stairs if there’s no hand rails? Why am I getting worse? Finally I have a diagnosis. I have CMT or Charcot-Marie-Tooth disease. Continue reading

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Posted in AFO, Art de Cure, Charcot-Marie-Tooth disease, CMT, CMTA, Health CMT, human clinical trials, leg braces, Neurologist, neuromuscular disease, neurotoxic drugs, peripheral neuropathy, personal stories, physical therapist, STAR, stem cell research | Tagged , , , , , , , , , , | 2 Comments

Supporting the CMTA {Buffalo Photography}

by Katie Ingraham Charcot-Marie-Tooth, or CMT, is the most commonly inherited peripheral neuropathy and is found worldwide among all races and ethnic groups. And it is found very prevelantly in my family. My Grandma and her three brothers were all … Continue reading

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Charcot-Marie-Tooth patients respond to AFO management

Charcot-Marie-Tooth patients respond to AFO management. But recognizing device limits is key By Shalmali Pal Muscle weakness and instability associated with Charcot-Marie-Tooth disease in children can be addressed with ankle foot orthoses, research suggests, but practi­tioners should be aware of … Continue reading

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Governor Letter requesting Proclamation for CMT Awareness Month

The Charcot-Marie-Tooth Association 2700 Chestnut Street Chester, PA 19013-4867 610-499-9264 * Fax 1-800-606-CMTA info@cmtausa.org * http://www.cmtasa.org                                                                            February 23, 2011 Honorable Andrew M. Cuomo Governor, New York State New York State Executive Chamber State Capitol Building Albany, New York 12224 … Continue reading

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Resources

In 1999, Gretchen Glick founded CMTUS, an e-network for patients suffering from a genetic peripheral neuropathy, Charcot-Marie-Tooth disease (CMT), which leads to muscle wasting, weakness and nerve pain. Gretchen saw the need for people with CMT to connect worldwide to … Continue reading

Posted in Charcot-Marie-Tooth disease, Health CMT, neuromuscular disease, peripheral neuropathy | Tagged , , , , , , , , | 1 Comment