Tag Archives: Neurological Disorders

CMT Awareness Month Challenge

We’ve all seen the ALS Awareness Bucket Campaign and how ALS successfully raised over $109 million, well now comes the CMT Awareness Challenge. I’ve been nominated for this challenge to write 3 things that I am grateful for relating to CMT, over the next 5 days.
I believe the point is to help people understand what it’s like to have CMT, and let them know where they can donate to find a treatment to stop the progression. Continue reading

Posted in AFO, ALS, Awareness Month, Charcot-Marie-Tooth disease, CMT, CMT Awareness Month, CMTA, Fundraising, Health CMT, leg braces, neuromuscular disease, peripheral neuropathy, personal stories, phrenic nerve | Tagged , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Supporting the CMTA {Buffalo Photography}

by Katie Ingraham Charcot-Marie-Tooth, or CMT, is the most commonly inherited peripheral neuropathy and is found worldwide among all races and ethnic groups. And it is found very prevelantly in my family. My Grandma and her three brothers were all … Continue reading

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Charcot-Marie-Tooth patients respond to AFO management

Charcot-Marie-Tooth patients respond to AFO management. But recognizing device limits is key By Shalmali Pal Muscle weakness and instability associated with Charcot-Marie-Tooth disease in children can be addressed with ankle foot orthoses, research suggests, but practi­tioners should be aware of … Continue reading

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Resources

In 1999, Gretchen Glick founded CMTUS, an e-network for patients suffering from a genetic peripheral neuropathy, Charcot-Marie-Tooth disease (CMT), which leads to muscle wasting, weakness and nerve pain. Gretchen saw the need for people with CMT to connect worldwide to … Continue reading

Posted in Charcot-Marie-Tooth disease, Health CMT, neuromuscular disease, peripheral neuropathy | Tagged , , , , , , , , | 1 Comment