Blogs I Follow
CMTA research – The Time Is Now!
Tag Archives: Genetic disorder
My good friend, Amy, has convinced me to get back on a bike again by joining her in participating in the 3rd annual CYCLE 4 CMT on August 28. Last year, I went to this event to support Amy, raise some money for CMT, and enjoy the party. Continue reading
As a child I always knew I was different, but never really knew anything was wrong. I was always the last one picked in gym class, could never run a mile in the amount of time that is required to even pass gym. To this day I am sure that the teacher “fudged” my time just to get me out. Continue reading
Mom almost fainted and I nearly fell off the couch, when watching a recent episode of USA Network’s Royal Pains, a comedy television series about a concierge doctor-on- demand working in the Hamptons. When attempting to diagnose Divya’s new boyfriend’s arm numbness and paralysis, Dr. Jeremiah said he may have CMT, “which is almost always fatal.” That’s NOT true. Continue reading