Tag Archives: Disney

Disney Ticket Raffle for Charcot-Marie-Tooth disease!

In conjunction with the Starry Night benefit for CMT in Albany, NY, you can once again try your luck on our raffle for four one-day Park Hopper® tickets for use at the Magic Kingdom®, Epcot®, Disney’s Hollywood Studios™ and Disney’s Animal Kingdom® Park Florida. (valued at $496)
http://www.cmtausa.org/url/disneyraffle Continue reading

Advertisements
Posted in Charcot-Marie-Tooth disease | Tagged , , , , , , , , , , , , , , , , , , | Leave a comment

Starry Night Art de Cure Gallery Reception Raises funds for CMT

Upstate NY CMT Support and Action group held its second Starry Night Art de Cure gallery reception to benefit the Charcot-Marie-Tooth Association (CMTA) on December 7, 2012 hosted by David and Elizabeth Misener at our CMT art gallery located at Clinical Prosthetics + Orthotics in Albany, NY. Continue reading

Posted in art, Art de Cure, Charcot-Marie-Tooth disease, CMT, CMTA, fundraiser, Fundraising, Health CMT, neuromuscular disease, peripheral neuropathy | Tagged , , , , , , , , , , , , , , , | 4 Comments

PROFILES IN CMT Interview with Amy Gander

Amy’s mother worried something was wrong with her when she was just 3 years old. “My mother said I began throwing my right leg out when I was 3. My right leg would go out from under me, and my gait was off,” said Amy. Continue reading

Posted in AFO, Charcot-Marie-Tooth disease, CMT, CMTA, Health CMT, leg braces, Neurologist, neuromuscular disease, neurotoxic drugs, peripheral neuropathy, personal stories, physical therapist | Tagged , , , , , , , , , , , , | 4 Comments

Learning to walk with your new cane.

After writing about various types of canes, I thought I should share some tips on learning to walk with a cane, which can be a bit tricky at first.
puppet-walking-with-a-cane
If possible have a physical therapist or caregiver teach you how to walk with your cane. With my first cane I attempted to walk with it on my weak side, as this seemed to make sense. However, my physical therapist taught me the correct way to use my cane on my good side. At first I was tempted to look at my feet to see where they’re going. Continue reading

Posted in Charcot-Marie-Tooth disease, Health CMT, neuromuscular disease, peripheral neuropathy, physical therapist | Tagged , , | Leave a comment