We’ve all seen the ALS Awareness Bucket Campaign and how ALS successfully raised over $109 million, well now comes the CMT Awareness Challenge. I’ve been nominated for this challenge to write 3 things that I am grateful for relating to CMT, over the next 5 days.
I believe the point is to help people understand what it’s like to have CMT, and let them know where they can donate to find a treatment to stop the progression. Continue reading
Posted in AFO, ALS, Awareness Month, Charcot-Marie-Tooth disease, CMT, CMT Awareness Month, CMTA, Fundraising, Health CMT, leg braces, neuromuscular disease, peripheral neuropathy, personal stories, phrenic nerve
Tagged ALS, Awareness, Charcot-Marie-Tooth, Charcot-Marie-Tooth Association, Charcot-Marie-Tooth disease, CMT, CMTA, Conditions and Diseases, Disability, Disease, Health, Muscle atrophy, nerve disorder, Neurological disorder, Neurological Disorders, Neuromuscular disease, neuromuscular disorder, Peripheral neuropathy, Public health, Rare disease, research, Twitter, Upstate New York
Meet The Blogger Behind Parsimonious Pash Interview by Melinda Lang How did you decide to become a blogger? Honestly this is probably one of the toughest questions you could ask. I tried my way with a couple of blogs before … Continue reading
Posted in Charcot-Marie-Tooth disease, CMT, CMTA, Health CMT, leg braces, neuromuscular disease, peripheral neuropathy, personal stories
Tagged Ashley Pomykala, Charcot-Marie-Tooth disease, CMT, Disability, Disabled, hereditary, nerve disorder, Neuromuscular disease, Orthotics, Parsimonious Pash, Todd MacCulloch
Studies show that people who suffer from debilitating diseases tend to have a higher risk of depression. It can be a struggle getting up every day when you have a major medical condition. Despite what the name would seem to indicate, Charcot-Marie-Tooth disease is not a disease of the teeth, but rather a very serious nerve disorder that can make leading a normal life difficult. People who suffer from CMT experience a progressive weakness in the extremities due to a weakening of the nerves. Continue reading
Posted in Charcot-Marie-Tooth disease, CMT, Health CMT, neuromuscular disease, peripheral neuropathy
Tagged Charcot-Marie-Tooth, Charcot-Marie-Tooth disease, CMT, depression, Disability, Disease, Health, medical conditions, Muscle atrophy, nerves, Peripheral neuropathy
There’s Still Time to Support the
ABLE Act of 2011 (H.R. 3423/S. 1872)
Ring in the new year by telling your elected officials that the ABLE Act matters to you!
Please contact your elected officials, and let them know that you support the Achieving a Better Life Experience (ABLE) Act of 2011, which helps Americans with disabilities save money for the future to achieve more independence and success. Continue reading
When a representative of the Charcot-Marie-Tooth Association visited our support group, he said, “Whenever I speak to CMT groups, I ask how many think of themselves as disabled.” He finds very few raise their hand. He went on to say, … Continue reading