Tag Archives: Charcot-Marie-Tooth Association

3rd Annual CYCLE 4 CMT

My good friend, Amy, has convinced me to get back on a bike again by joining her in participating in the 3rd annual CYCLE 4 CMT on August 28. Last year, I went to this event to support Amy, raise some money for CMT, and enjoy the party. Continue reading

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What’s Wrong With Me?

I recently learned, after my Aunt let it slip, that my parents knew there was something “wrong” with me, when I was an infant. Even though my father was not a fan of doctors, they had me examined, hoping for an answer. Continue reading

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Block Island Spasms

I will not stop traveling, nor will I avoid places with stairs. I will not stop walking, until I can no longer take another step. So, we need to find a drug to stop CMT leg cramps and muscle spasms. We need to find a drug to stop the progression for the millions of children, who have lost the normal function of their legs and arms. Many more people suffer from CMT than from MS, ALS and many other diseases that everyone knows about. That’s why CMT Awareness Month is so important, to help those, who have been misdiagnosed, or like myself, go undiagnosed for years wondering what’s wrong with them. Continue reading

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CMT Awareness Month Challenge

We’ve all seen the ALS Awareness Bucket Campaign and how ALS successfully raised over $109 million, well now comes the CMT Awareness Challenge. I’ve been nominated for this challenge to write 3 things that I am grateful for relating to CMT, over the next 5 days.
I believe the point is to help people understand what it’s like to have CMT, and let them know where they can donate to find a treatment to stop the progression. Continue reading

Posted in AFO, ALS, Awareness Month, Charcot-Marie-Tooth disease, CMT, CMT Awareness Month, CMTA, Fundraising, Health CMT, leg braces, neuromuscular disease, peripheral neuropathy, personal stories, phrenic nerve | Tagged , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

NEW ART INSTALLED at Art de Cure Gallery for CMT


NEW ART INSTALLED at Art de Cure Gallery for CMT
 at the Christine A. Hook Gallery at CPO for Charcot-Marie-Tooth (CMT) neurodegnerative disorder, for our next show,“MULTIPLICITY,” 
which runs from JANUARY 10, 2014 through JUNE 13, 2014. Continue reading

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Disney Ticket Raffle for Charcot-Marie-Tooth disease!

In conjunction with the Starry Night benefit for CMT in Albany, NY, you can once again try your luck on our raffle for four one-day Park Hopper® tickets for use at the Magic Kingdom®, Epcot®, Disney’s Hollywood Studios™ and Disney’s Animal Kingdom® Park Florida. (valued at $496)
http://www.cmtausa.org/url/disneyraffle Continue reading

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SAVE-THE-DATE-December-5, 2013-Starry-Night-For-CMT

New Art show installed at the Art de Cure gallery for CMT at CPO (Clinical Prosthetics+Orthotics) benefitting the Charcot-Marie-Tooth Association

NOW SHOWING: “Gracelines”

DATES: JUNE 14, 2013 – JANUARY 10, 2014

Starry Night for CMT Reception and Dedication of gallery in memoriam for Christine A. Hook on December 5, 2013 Thursday from 4-7 PM. Featuring Silent Auction of Original art work, jewelry, gift baskets, gift cards and complimentary light fare.

Continue reading

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Now we can finally Relax!

Thank you to all who came out to support the Charcot-Marie-Tooth Association’s search for a cure at the Art de Cure gallery artists’ reception for CMT at Clinical Prosthetics + Orthotics located at 149 South Lake Avenue in Albany, NY. Good times. Good food. Great art. Continue reading

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