Tag Archives: Awareness

3rd Annual CYCLE 4 CMT

My good friend, Amy, has convinced me to get back on a bike again by joining her in participating in the 3rd annual CYCLE 4 CMT on August 28. Last year, I went to this event to support Amy, raise some money for CMT, and enjoy the party. Continue reading

Advertisements
Posted in Awareness Month, Charcot-Marie-Tooth disease, CMT, CMT Awareness Month, CMTA, fundraiser, Fundraising, neuromuscular disease, peripheral neuropathy | Tagged , , , , , , , , , , , , | Leave a comment

CMT Awareness Month Challenge

We’ve all seen the ALS Awareness Bucket Campaign and how ALS successfully raised over $109 million, well now comes the CMT Awareness Challenge. I’ve been nominated for this challenge to write 3 things that I am grateful for relating to CMT, over the next 5 days.
I believe the point is to help people understand what it’s like to have CMT, and let them know where they can donate to find a treatment to stop the progression. Continue reading

Posted in AFO, ALS, Awareness Month, Charcot-Marie-Tooth disease, CMT, CMT Awareness Month, CMTA, Fundraising, Health CMT, leg braces, neuromuscular disease, peripheral neuropathy, personal stories, phrenic nerve | Tagged , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Spreading Awareness One Person at a Time

At the CMTA support group leader conference in Chicago, a speaker encouraged us to tell at least one person each day about Charcot-Marie-Tooth (CMT) disorder. Thereby, spreading awareness of this disease, which affects an estimated 5 million people worldwide, and yet most have never heard of. Today, while getting an ultrasound of my spleen, four more people learned about CMT. Continue reading

Posted in Charcot-Marie-Tooth disease | Tagged , , , , , , , , , , , , , , | 1 Comment

Profiles in CMT: Interview with Christine A. Hook

Christine A. Hook’s Interview with Melinda Lang

You recently received an award from the CMTA, tell us about your award and how you were nominated.

Yes, I recently received the National ‘I am a STAR’ award, for everything I have tried to do to raise awareness of CMT, and money for research…through the CMT blog, Grace Lines, I write, and the Art de Cure gallery I co-coordinate, which benefits the CMTA. My parents nominated me for the award, and I’m still shocked that the CMTA chose me. It’s a great honor! Continue reading

Posted in Art de Cure, Charcot-Marie-Tooth disease, CMT, CMTA, Health CMT, neuromuscular disease, peripheral neuropathy, personal stories, STAR | Tagged , , , , , , , | 6 Comments

Take Action For Rare Disease Day!

This will only take a few minutes to get your voice heard! Today, February 29, 2012, is Rare Disease Day.  I just took action to raise awareness in the United States about people with rare diseases! Please take a few … Continue reading

Posted in Charcot-Marie-Tooth disease, Health CMT, neuromuscular disease, peripheral neuropathy, Rare disease day | Tagged , , , , , , , | 1 Comment

“What CMT Means To Me”

by Melinda Lang CMT means sometimes I start my day by getting our of bed, tripping over my feet, and falling on my face. CMT means to me that I found new friends after starting a local support group. CMT … Continue reading

Posted in Charcot-Marie-Tooth disease, Health CMT, neuromuscular disease, peripheral neuropathy | Tagged , , , , , | 4 Comments

September Action of the Month

Use Social Networking to Spread the Word

Social networking is a great way to spread the word about news, upcoming events and your personal experiences with Charcot-Marie-Tooth disease. The Charcot-Marie-Tooth Association encourages you to take some time this September to build your social media presence so you can help engage the public when the CMTA launches its CMT Awareness Month campaign on Facebook September 1. By connecting to the CMTA through Facebook and Twitter, you and your friends and followers will have immediate access to our upcoming CMT Awareness Month campaign so you can get involved and help spread the word! Continue reading

Posted in Charcot-Marie-Tooth disease, Health CMT, neuromuscular disease, peripheral neuropathy | Tagged , , , , , | 3 Comments

Governor Letter requesting Proclamation for CMT Awareness Month

The Charcot-Marie-Tooth Association 2700 Chestnut Street Chester, PA 19013-4867 610-499-9264 * Fax 1-800-606-CMTA info@cmtausa.org * http://www.cmtasa.org                                                                            February 23, 2011 Honorable Andrew M. Cuomo Governor, New York State New York State Executive Chamber State Capitol Building Albany, New York 12224 … Continue reading

Posted in Charcot-Marie-Tooth disease | Tagged , , , | 3 Comments