Category Archives: leg braces

CMT Awareness Month Challenge

We’ve all seen the ALS Awareness Bucket Campaign and how ALS successfully raised over $109 million, well now comes the CMT Awareness Challenge. I’ve been nominated for this challenge to write 3 things that I am grateful for relating to CMT, over the next 5 days.
I believe the point is to help people understand what it’s like to have CMT, and let them know where they can donate to find a treatment to stop the progression. Continue reading

Posted in AFO, ALS, Awareness Month, Charcot-Marie-Tooth disease, CMT, CMT Awareness Month, CMTA, Fundraising, Health CMT, leg braces, neuromuscular disease, peripheral neuropathy, personal stories, phrenic nerve | Tagged , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Naked With Army Boots

We just returned from a mini vacation in Key West, land of t-shirts, shorts & flip-flops, where fashion does not matter and anything goes. If you were to walk down Duval Street naked with Army boots, no-one would notice. Not that I tried this. I must have read this somewhere. Continue reading

Posted in AFO, Charcot-Marie-Tooth disease, CMT, Health CMT, leg braces, neuromuscular disease, peripheral neuropathy | Tagged , , , , , , , | 4 Comments

Meet fellow CMT blogger, Ashley Pomykala

Meet The Blogger Behind Parsimonious Pash Interview by Melinda Lang How did you decide to become a blogger? Honestly this is probably one of the toughest questions you could ask.  I tried my way with a couple of blogs before … Continue reading

Posted in Charcot-Marie-Tooth disease, CMT, CMTA, Health CMT, leg braces, neuromuscular disease, peripheral neuropathy, personal stories | Tagged , , , , , , , , , , | 3 Comments

A Race For The Brace by guest blogger Amy

As a child I always knew I was different, but never really knew anything was wrong. I was always the last one picked in gym class, could never run a mile in the amount of time that is required to even pass gym. To this day I am sure that the teacher “fudged” my time just to get me out. Continue reading

Posted in AFO, Charcot-Marie-Tooth disease, CMT, CMTA, fundraiser, Fundraising, Health CMT, leg braces, neuromuscular disease, peripheral neuropathy, personal stories | Tagged , , , , , , , , , , | 6 Comments

Do you start your day by falling on your face?

How do you start your day? I begin most days by getting out of bed, taking a few steps and falling splat on my face. Then I crawl over to the dresser and struggle to pull myself up off the floor with my weakened, muscle wasted arms.
After 47 years of wondering what’s wrong with me- why do I keep tripping over my own feet and spraining my ankles? Why can’t I get up out of a chair without my husband grabbing me by my belt loop to pull me up? Why do I need to crawl up the stairs if there’s no hand rails? Why am I getting worse? Finally I have a diagnosis. I have CMT or Charcot-Marie-Tooth disease. Continue reading

Posted in AFO, Art de Cure, Charcot-Marie-Tooth disease, CMT, CMTA, Health CMT, human clinical trials, leg braces, Neurologist, neuromuscular disease, neurotoxic drugs, peripheral neuropathy, personal stories, physical therapist, STAR, stem cell research | Tagged , , , , , , , , , , | 2 Comments

PROFILES IN CMT Interview with Amy Gander

Amy’s mother worried something was wrong with her when she was just 3 years old. “My mother said I began throwing my right leg out when I was 3. My right leg would go out from under me, and my gait was off,” said Amy. Continue reading

Posted in AFO, Charcot-Marie-Tooth disease, CMT, CMTA, Health CMT, leg braces, Neurologist, neuromuscular disease, neurotoxic drugs, peripheral neuropathy, personal stories, physical therapist | Tagged , , , , , , , , , , , , | 4 Comments

Guest Post for Medical Mystery: “Funny Name….Serious Disorder”

September is National Charcot-Marie Tooth (CMT) Awareness Month. Whenever I answer the question of “What’s wrong with you?”- with I have Charcot-Marie-Tooth disease, the response is, usually: “Shark teeth. What? followed by: “What’s wrong with your teeth?”

CMT Awareness Month poster 2012

CMT, a genetic peripheral neuropathy, leads to the loss of normal function of arms, legs hands & feet, due to nerve damage and muscle wasting. CMT affects approximately 1 out of 2,500 people or around 150,000 Americans, yet most people and many doctors are unfamiliar with it. Continue reading

Posted in AFO, Charcot-Marie-Tooth disease, CMTA, Health CMT, human clinical trials, leg braces, neurological exam, Neurologist, neuromuscular disease, neurotoxic drugs, peripheral neuropathy, physical therapist, Presidential Proclamation, Rare disease day, stem cell research | Tagged , | 5 Comments

Switch to Allard carbon composite AFOs increases calf circumference, study finds

Research presented in March at the American Association of Orthotists & Prosthetists meeting in Atlanta reported that switching patients with foot drop from a molded plastic ankle foot orthosis (AFO) to energy reflecting carbon open-heel AFOs made by Rockaway, NJ-based Allard USA significantly increased calf circumference eight weeks after the change. Continue reading

Posted in AFO, Charcot-Marie-Tooth disease, Health CMT, leg braces, neuromuscular disease, peripheral neuropathy | Tagged , , , | Leave a comment