Category Archives: Fundraising

3rd Annual CYCLE 4 CMT

My good friend, Amy, has convinced me to get back on a bike again by joining her in participating in the 3rd annual CYCLE 4 CMT on August 28. Last year, I went to this event to support Amy, raise some money for CMT, and enjoy the party. Continue reading

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CMT Awareness Month Challenge

We’ve all seen the ALS Awareness Bucket Campaign and how ALS successfully raised over $109 million, well now comes the CMT Awareness Challenge. I’ve been nominated for this challenge to write 3 things that I am grateful for relating to CMT, over the next 5 days.
I believe the point is to help people understand what it’s like to have CMT, and let them know where they can donate to find a treatment to stop the progression. Continue reading

Posted in AFO, ALS, Awareness Month, Charcot-Marie-Tooth disease, CMT, CMT Awareness Month, CMTA, Fundraising, Health CMT, leg braces, neuromuscular disease, peripheral neuropathy, personal stories, phrenic nerve | Tagged , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

NEW ART INSTALLED at Art de Cure Gallery for CMT


NEW ART INSTALLED at Art de Cure Gallery for CMT
 at the Christine A. Hook Gallery at CPO for Charcot-Marie-Tooth (CMT) neurodegnerative disorder, for our next show,“MULTIPLICITY,” 
which runs from JANUARY 10, 2014 through JUNE 13, 2014. Continue reading

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Art de Cure raises over $22,800 for the Charcot-Marie-Tooth Association.

Imagine walking into your doctor’s office and instead of facing blank walls, you are surrounded by a gallery of original art work to enjoy, while you wait. Art de Cure, a collaboration between art and medicine, provides such galleries in medical offices throughout the Capital region in New York, while raising money for charities.
Continue reading

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A Race For The Brace by guest blogger Amy

As a child I always knew I was different, but never really knew anything was wrong. I was always the last one picked in gym class, could never run a mile in the amount of time that is required to even pass gym. To this day I am sure that the teacher “fudged” my time just to get me out. Continue reading

Posted in AFO, Charcot-Marie-Tooth disease, CMT, CMTA, fundraiser, Fundraising, Health CMT, leg braces, neuromuscular disease, peripheral neuropathy, personal stories | Tagged , , , , , , , , , , | 6 Comments

2012 in review

The WordPress.com stats helper monkeys prepared a 2012 annual report for this blog. Here’s an excerpt: 600 people reached the top of Mt. Everest in 2012. This blog got about 5,900 views in 2012. If every person who reached the … Continue reading

Posted in Charcot-Marie-Tooth disease, CMT, fundraiser, Fundraising, Health CMT, neuromuscular disease, peripheral neuropathy | Tagged | 2 Comments

Starry Night Art de Cure Gallery Reception Raises funds for CMT

Upstate NY CMT Support and Action group held its second Starry Night Art de Cure gallery reception to benefit the Charcot-Marie-Tooth Association (CMTA) on December 7, 2012 hosted by David and Elizabeth Misener at our CMT art gallery located at Clinical Prosthetics + Orthotics in Albany, NY. Continue reading

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Now we can finally Relax!

Thank you to all who came out to support the Charcot-Marie-Tooth Association’s search for a cure at the Art de Cure gallery artists’ reception for CMT at Clinical Prosthetics + Orthotics located at 149 South Lake Avenue in Albany, NY. Good times. Good food. Great art. Continue reading

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Trekking nearly 6,000 miles across the U.S. to raise money for the Challenged Athletes Foundation.

Remarkable young man from Sweden touring the US on an ElliptiGo, a bike for challenged athletes. On his journey across the country, Andreas Johansson, afflicted with Charcot-Marie-Tooth disease (CMT), hopes to raise awareness of CMT and money for the Challenged Athletes Foundation® (CAF). CAF is a world leader in creating athletic opportunities for individuals with physical disabilities. Continue reading

Posted in AFO, Charcot-Marie-Tooth disease, Fundraising, Health CMT, Neurologist, neuromuscular disease, peripheral neuropathy, physical therapist | Tagged , , , | 3 Comments

2011 in review!

The WordPress.com stats helper monkeys prepared a 2011 annual report for this blog. Here’s an excerpt: A San Francisco cable car holds 60 people. This blog was viewed about 3,300 times in 2011. If it were a cable car, it … Continue reading

Posted in Art de Cure, Charcot-Marie-Tooth disease, Fundraising, Health CMT, neuromuscular disease, NY Jets, peripheral neuropathy | Leave a comment