Blogs I Follow
CMTA research – The Time Is Now!
Category Archives: Fundraising
My good friend, Amy, has convinced me to get back on a bike again by joining her in participating in the 3rd annual CYCLE 4 CMT on August 28. Last year, I went to this event to support Amy, raise some money for CMT, and enjoy the party. Continue reading
We’ve all seen the ALS Awareness Bucket Campaign and how ALS successfully raised over $109 million, well now comes the CMT Awareness Challenge. I’ve been nominated for this challenge to write 3 things that I am grateful for relating to CMT, over the next 5 days.
I believe the point is to help people understand what it’s like to have CMT, and let them know where they can donate to find a treatment to stop the progression. Continue reading
NEW ART INSTALLED at Art de Cure Gallery for CMT at the Christine A. Hook Gallery at CPO for Charcot-Marie-Tooth (CMT) neurodegnerative disorder, for our next show,“MULTIPLICITY,” which runs from JANUARY 10, 2014 through JUNE 13, 2014. Continue reading
Imagine walking into your doctor’s office and instead of facing blank walls, you are surrounded by a gallery of original art work to enjoy, while you wait. Art de Cure, a collaboration between art and medicine, provides such galleries in medical offices throughout the Capital region in New York, while raising money for charities.
As a child I always knew I was different, but never really knew anything was wrong. I was always the last one picked in gym class, could never run a mile in the amount of time that is required to even pass gym. To this day I am sure that the teacher “fudged” my time just to get me out. Continue reading
The WordPress.com stats helper monkeys prepared a 2012 annual report for this blog. Here’s an excerpt: 600 people reached the top of Mt. Everest in 2012. This blog got about 5,900 views in 2012. If every person who reached the … Continue reading
Upstate NY CMT Support and Action group held its second Starry Night Art de Cure gallery reception to benefit the Charcot-Marie-Tooth Association (CMTA) on December 7, 2012 hosted by David and Elizabeth Misener at our CMT art gallery located at Clinical Prosthetics + Orthotics in Albany, NY. Continue reading
Thank you to all who came out to support the Charcot-Marie-Tooth Association’s search for a cure at the Art de Cure gallery artists’ reception for CMT at Clinical Prosthetics + Orthotics located at 149 South Lake Avenue in Albany, NY. Good times. Good food. Great art. Continue reading
Remarkable young man from Sweden touring the US on an ElliptiGo, a bike for challenged athletes. On his journey across the country, Andreas Johansson, afflicted with Charcot-Marie-Tooth disease (CMT), hopes to raise awareness of CMT and money for the Challenged Athletes Foundation® (CAF). CAF is a world leader in creating athletic opportunities for individuals with physical disabilities. Continue reading