Category Archives: ALS

CMT Awareness Month Challenge

We’ve all seen the ALS Awareness Bucket Campaign and how ALS successfully raised over $109 million, well now comes the CMT Awareness Challenge. I’ve been nominated for this challenge to write 3 things that I am grateful for relating to CMT, over the next 5 days.
I believe the point is to help people understand what it’s like to have CMT, and let them know where they can donate to find a treatment to stop the progression. Continue reading

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Posted in AFO, ALS, Awareness Month, Charcot-Marie-Tooth disease, CMT, CMT Awareness Month, CMTA, Fundraising, Health CMT, leg braces, neuromuscular disease, peripheral neuropathy, personal stories, phrenic nerve | Tagged , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Budget Control Act of 2011 could have a devastating effect on research

Under the Budget Control Act of 2011, federal programs face an across-the-board funding cut of nearly 8 percent in January 2013, if Congress hasn’t reached agreement on a budget deficit reduction plan. Continue reading

Posted in ALS, Alzheimer's, Charcot-Marie-Tooth disease, Health CMT, human clinical trials, MS, neuromuscular disease, Parkinson's, peripheral neuropathy, Rare disease day, STAR, stem cell research | Tagged , , , , , , , , , , , , , | Leave a comment

STAR’s Transformation Project

For the first time ever, live adult human stem cells will be used to search for effective compounds to treat CMT. The CMTA has embarked on this groundbreaking STAR research project to rapidly accelerate the drug development process in search of a successful treatment to slow, stop or potentially reverse the progression of CMT Continue reading

Posted in ALS, Alzheimer's, Charcot-Marie-Tooth disease, CMTA, Health CMT, human clinical trials, MS, neurological exam, Neurologist, neuromuscular disease, Parkinson's, peripheral neuropathy, STAR, stem cell research | Tagged , , , , , , , , | Leave a comment