2013 RARE Champion of Hope Community Nominated Awards

World Rare Disease Day

World Rare Disease Day (Photo credit: Sweet One)

The Tribute to Champions of Hope Gala is being held in Newport Beach, CA on September 21st and the Global Genes Project is looking for RARE Champions to be recognized for four special awards nominated by you!  Nominations are being accepted April 1st through May 15th.

Categories include:

Medical Care & Treatment RARE Champion
Recognizing an individual who goes above and beyond in clinical care and treatment for a rare disease patient, family, or the community at large. Someone who engages with a patient/family with a rare disease to optimize care and treatment. This person could be a doctor, nurse or special care provider.

Research & Science RARE Champion
Recognizing an individual who is moving the bar in rare disease research and science. Whether from academia, industry, clinic, or an advocacy group, this person works to advance research for a specific rare disease or is a key agent in the provision of tools and approaches to developing and/or delivering more effective treatments for the rare community.

Collaborations in Advocacy (New for 2013!)
In order to advance efforts related to advocacy, we are finding collaborations are critical and necessary. We are looking to honor those organizations and individuals who see the importance and value in collaborating around a rare disease or group of diseases. Submissions must include names of all parties included in the collaboration.

Collaborations in Research and Science (New for 2013!)
In order to advance efforts related to research and science, we are finding collaborations are critical and necessary. We are looking to honor those organizations and individuals who see the importance and value in collaborating around a rare disease or group of diseases.  Submissions must include names of all parties included in the collaboration.

I voted for the CMTA for Advocacy here: http://globalgenes.org/2013nominate

Provide your name, email and phone number. Choose a category and answer a few questions.

What Make Your Nominee(s) Special?

In what ways do you think your nominee is innovative?

Other Comments

Do you have anything else to share about your nominee or this process?

For more information on the CMTA visit www.cmtausa.org

The Global Genes Project is one of the leading rare and genetic disease patient advocacy organizations in the world. The non-profit organization is led by Team R.A.R.E. and promotes the needs of the rare and genetic disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon™. What began as a grassroots movement in 2009 with a few rare disease parent advocates and foundations has grown to over 500 global organizations.

Resources: http://globalgenes.org/who-we-are-2/

 

 

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This entry was posted in Charcot-Marie-Tooth disease, Global Genes Project, Health CMT, neuromuscular disease, peripheral neuropathy, RARE Champion of Hope Community Awards, Rare disease day and tagged , , , , , , , , , , , , . Bookmark the permalink.

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