Take action to support new therapies for rare diseases

Rare disease day logo
There is an effort underway in Congress to expedite the review

of new therapies for serious or life-threatening conditions,

making sure that they are commercially available as soon as

possible. By following this link to the National Organization for Rare Disorders‘s

legislative action center, you can send an electronic message to Congress in support of

these important reforms at FDA. Click on this URL to take action now

http://capwiz.com/rarediseases/utr/2/?a=61102011&i=119911473&c=&u=www.capwiz.com %2Frarediseases%2Fissues%2Falert%2F%3Falertid%3D61102011%26type%3Dco

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This entry was posted in Charcot-Marie-Tooth disease, Health CMT, neuromuscular disease, peripheral neuropathy, Rare disease day and tagged , , , , . Bookmark the permalink.

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