Take Action For Rare Disease Day!

This will only take a few minutes to get your voice heard!

Today, February 29, 2012, is Rare Disease Day.  I just took action to raise awareness in the United States about people with rare diseases!

Handprints On the Hill Be HeardPlease take a few minutes and let your elected officials know that you also care about people with rare diseases and wish them a bright future! Visit this link, type in your zip code and a list of your legislatures will appear. Edit letter and email/mail. Easy!!!


This entry was posted in Charcot-Marie-Tooth disease, Health CMT, neuromuscular disease, peripheral neuropathy, Rare disease day and tagged , , , , , , , . Bookmark the permalink.

1 Response to Take Action For Rare Disease Day!

  1. Pingback: Take action to support new therapies for rare diseases | Living Well with CMT (Charcot-Marie-Tooth)

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