Governor Letter requesting Proclamation for CMT Awareness Month

The Charcot-Marie-Tooth Association
2700 Chestnut Street
Chester, PA 19013-4867
610-499-9264 * Fax 1-800-606-CMTA
info@cmtausa.org *
http://www.cmtasa.org
                                                                          

February 23, 2011
Honorable Andrew M. Cuomo
Governor, New York State
New York State Executive Chamber
State Capitol Building
Albany, New York 12224

Honorable Governor Cuomo,

I am writing on behalf of the Charcot-Marie-Tooth Association to inform you of our plans for National Charcot-Marie-Tooth Neuromuscular Disease Awareness Month, September 2011.

This month has been set aside to focus on increasing education of this public health issue that affects approximately 150,000 Americans. There are an estimated 7,800 New Yorkers who are afflicted with Charcot-Marie-Tooth disease (CMT). However, many thousands more may be misdiagnosed and/or are unaware of the nature of this degenerative neuromuscular disorder causing grave disability. Plans for “CMT Awareness Month” came about because of the many cases of misdiagnosis and lack of awareness of CMT.

CMT causes deterioration of the peripheral nerves, muscle atrophy, weakness and numbness to legs, forearms hands and feet. CMT causes foot drop, balance problems, hammer toes, high arches, muscle cramping, and loss of reflexes, bone abnormalities, and curvature of the spine. If one parent has CMT there is a 50% chance of passing it on to the children. CMT can be diagnosed with a genetic blood test, or muscle or nerve biopsy. There is no cure or treatment for CMT.

During CMT Awareness Month, we hope to bring national attention to Charcot-Marie-Tooth disease with special events and media involvement. The general public must be made aware of signs and symptoms of CMT and encouraged to seek medical help before foot deformities and nerve damage occur.  A proclamation for Charcot-Marie-Tooth disease Awareness Month from your office would be most welcome to help bring attention to this devastating disorder.

Respectfully,

                                                The CMTA Vision: A World Without CMT
Our Mission: To generate the resources to find a cure, to create awareness and to improve the quality of life   for those affected by Charcot-Marie-Tooth disease
. Charcot-Marie-Tooth disease is the most commonly inherited peripheral neuropathy
Advertisements
This entry was posted in Charcot-Marie-Tooth disease and tagged , , , . Bookmark the permalink.

3 Responses to Governor Letter requesting Proclamation for CMT Awareness Month

  1. security says:

    Greeeeeeeeat Blog Love the Infomation you have provided me .

    Like

  2. Pingback: Yes, that hurts! | Living Well with CMT (Charcot-Marie-Tooth)

  3. Pingback: Advocacy and Outreach News | Living Well with CMT (Charcot-Marie-Tooth)

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s